Wednesday, January 19 I returned home from the hospital continued the new therapy based on ' use of a device very expensive - the pump to Duodopa - paid, in my case, the Veneto Region and can be considered a privilege because not all regions subsidize it: it is a duty to use their best efforts, hoping that as soon as the treatment is for everybody and not be dependent on the boundaries of regions or states.
WHAT'S 'NEW UNDER THE SUN?
A cannula is changed to "lace" in the sense that before I only had one that was in the stomach
while now there are two more: one that leads into the duodenum Duodopa (medicine for Parkinson's disease) and related a balloon that serves as an anchor - usually inflated - if I understand correctly, it collapses if you have to remove the whole. The abdomen is still a kind of wheel plastic with a diameter of 4 cm, which sometimes decides to turn on his own. perhaps driven by gastric movements, or adheres strongly to the point of entry to almost take your breath away: then annoys!
The visible tip of the Trinity consists of a triple lock that made me think of a bunch of keys. You can complete the picture by connecting the one hand the feeding bag to gain weight and another the now "famous pump" of about a kilo, which refers to the machine you use to stop the investigation.
intervention and hospital stay
The surgery was sopportabilissimo and anyway I had little time to notice because I was charged an mild anesthesia. (Perhaps it is more correct to say sedation)
The stay in the ward and patients living with on social issues and their families, the ricieste and updating of the situation to the doctors and / the nurses, the ' assistance of her friends that night thank you for your endless patience in enduring my impatience, I have enabled a rich experience in some profiles, for others I would have preferred would be saved at all, especially to my husband for which the story continues and it is important that is in force.
He learned well the pump because is he that is activated when you wake up to prepare and launch it. Sooner or later you will need to train someone else and so I think that the service will be Michele!
IS BETTER?! This
of "Duodopa" seems to work better than other treatments tested so far.
an initial examination of the doctor is satisfied with the results (a little 'less growth in weight)
The "off non-motor" that characterize Parkinson's disease that struck me, very heavy and long-term I stiffened and I especially oppressed breathing.
Now when I hear them coming, I enter through the pump an additional dose of medicine:
disorders, although some intense, fade and disappear fairly quickly (within half an hour on average, only sometimes, maybe after a big meal and still find it hard to pass).
not use the pump while I sleep. I hope to feel better at night through the recruitment of a slow-release medication that, if it will work over time to replace the tablets of levodopa that is even, though rdotte, and that force us to interrupt sleep.
Somethin 'CHANGED
Compared to when they take levodopa tablets intermittently and had many fluctuations
and "off" heavy to bear (in particular the problems of breath) with the Duodopa I seem to live in another world. I hope that what seems to promise this therapy is maintained over time and not really disappoint me.
How nice it would be if my only concern was to find some remedy for sopportarer the weight and inconvenience of the pump until the company make it smaller without anything to take away 'effectiveness.
addition to relatives and friends in various forms were near me, I thank the medical staff and / the nurses who took care of me in this "special" holiday.
anna
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